Cystic Fibrosis: Lifestyle Mangement

Reviewed by Sara Brayshaw, RN, MSN
A healthy lifestyle is important for everyone. There are challenges to living with cystic fibrosis. Here are steps you can take to protect your health and live well with CF.

Your cystic fibrosis team will create a plan to help you live your best life.

  • Exercise regularly as directed by your health care provider. This helps you breathe easier by improving your muscle strength and tone and helps improve clearing the mucus from the airways.

  • Eat a well-balanced healthy diet and drink plenty of fluids. This may include specific recommendations by the  team.

  • Get a flu shot every year in the fall. Get the pneumococcal vaccines as recommended by your health care provider.

  • Give up smoking and avoid exposure to passive smoke. Ask your health care provider for techniques to help you give up smoking.

Living with cystic fibrosis is a unique and special challenge that you and your family must deal with on a daily basis. Management is a long-term commitment. But the more you know about CF, the better suited you are to managing the various aspects of your disease. As you take control, your quality of life will improve.

Be sure to talk with your health care provider if you have questions or concerns about your plan. Write down any questions you have and ask your health care provider at your next appointment.

 

Managing symptoms

You will learn how to care for your lungs and stomach, and identify when you are having problems, and when you need to see a physician. We can help you learn about CF and:

 

Emotional Wellness

Living with a chronic illness like CF can be very challenging. Patients and their loved ones need to find healthy and constructive responses to the stress of living with a chronic illness. Sometimes, even with excellent coping skills and strong social support, patients and their family members may feel anxious or depressed.

Psychological and social issues include:

 

Fitness and Nutrition

Regular physical activity and good nutrition are important — especially when you have cystic fibrosis. Evidence shows that regular exercise helps people with CF improve lung function; manage diabetes and heart disease; and prevent a host of other diseases and health issues. People with cystic fibrosis need to eat foods that are high in calories and protein, and take vitamin and mineral supplements. Your care team will work with you to create a fitness and nutrition plan that works for your needs and lifestyle.

 

Resources for Cystic Fibrosis

Cystic fibrosis is a life-long disease. It’s important to know what resources are available for patients and families. Learn more about resources for CF.

Clinical Trials

Impact of Combination Therapy on Cystic Fibrosis (TEACH Study)

The purpose of this study is to determine how two medications, azithromycin and inhaled tobramycin, work when taken together to treat cystic fibrosis (CF) patients with chronic pseudomonas aeruginosa (PA) lung infections.

Learn More