Determining How Parenthood Affects Cystic Fibrosis Patients
Trial Objectives
Surveys have shown that a growing number of cystic fibrosis (CF) patients are considering parenthood, so steps should be taken to better understand the effects of parenthood on CF patients in order to more effectively support them.
In this study, participants who have cystic fibrosis and became first-time parents between 2012 and 2022 will fill out a one-time survey to provide additional insight into parental health.
Who Can Participate
Adults aged 18 and older with a cystic fibrosis diagnosis who are participants in the Cystic Fibrosis Foundation’s Patient Registry. Participants also must have become first-time parents between 2012 and 2022.
Age: 18+ Gender: Any
Estimated Time Commitment
One survey, taking approximately 5 minutes
Payment & Reimbursement
Payment: Provided
Travel Reimbursement: Not Available
Trial Location
National Jewish Main Campus, Denver, CO
Trial Sponsors
National Institutes of Health and the CF Foundation (CFF)
Principal Investigators
Jennifer L. Taylor-Cousar, MD, MSCS