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Determining How Parenthood Affects Cystic Fibrosis Patients

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Trial Objectives

Surveys have shown that a growing number of cystic fibrosis (CF) patients are considering parenthood, so steps should be taken to better understand the effects of parenthood on CF patients in order to more effectively support them.

In this study, participants who have cystic fibrosis and became first-time parents between 2012 and 2022 will fill out a one-time survey to provide additional insight into parental health.

Who Can Participate

Adults aged 18 and older with a cystic fibrosis diagnosis who are participants in the Cystic Fibrosis Foundation’s Patient Registry. Participants also must have become first-time parents between 2012 and 2022.

Age: 18+ Gender Any

Estimated Time Commitment

One survey, taking approximately 5 minutes

Payment & Reimbursement

Payment Provided

Travel Reimbursement Not Available

Trial Contact

For more information, contact:

Samantha Johnson

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Trial Location

National Jewish Main Campus, Denver, CO

Trial Sponsors

National Institutes of Health and the CF Foundation (CFF)

Principal Investigators

Jennifer L. Taylor-Cousar

Jennifer L. Taylor-Cousar, MD, MSCS

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