Skip to content

Determining How Parenthood Affects Cystic Fibrosis Patients

Search Clinical Trials

Trial Objectives


Surveys have shown that a growing number of cystic fibrosis (CF) patients are considering parenthood, so steps should be taken to better understand the effects of parenthood on CF patients in order to more effectively support them.

In this study, participants who have cystic fibrosis and became first-time parents between 2012 and 2022 will fill out a one-time survey to provide additional insight into parental health.

Who Can Participate


Adults aged 18 and older with a cystic fibrosis diagnosis who are participants in the Cystic Fibrosis Foundation’s Patient Registry. Participants also must have become first-time parents between 2012 and 2022.

Age: 18+ Gender Any

Estimated Time Commitment


One survey, taking approximately 5 minutes

Payment & Reimbursement


Payment Provided

Travel Reimbursement Not Available

Trial Contact


For more information, contact:

Samantha Johnson
303.270.2598

Request More Information

Trial Location


National Jewish Main Campus, Denver, CO

Trial Sponsors


National Institutes of Health and the CF Foundation (CFF)

Principal Investigators

Jennifer L. Taylor-Cousar

Jennifer L. Taylor-Cousar, MD, MSCS

Request more Information

By completing this form, you agree to learn more about this study and see if you qualify.

I would also like to receive periodic emails with health information, news and clinical research updates from National Jewish Health required