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The health and safety of our guests is of the utmost importance. We are complying with the latest COVID-19 guidelines and strive to make your experience as safe as possible.
National Jewish Health is committed to the safety of our patients, staff and the community. Due to the concerns around COVID-19, we are temporarily suspending some support groups on our campus. We plan to resume these groups as soon as possible. Some have been moved to live web conferences and a link will be posted when available. Please check with the support group organizer for further information. Thank you for your understanding.
(Please contact Judy Simon for schedule.)
National Jewish Health is a proud sponsor of the AlphaBeaters. The AlphaBeaters is a support group dedicated to helping people learn to live better lives with alpha-1 antitrypsin deficiency.
Denver Support Group: AlphaBeaters
Support Group Meetings determined by the group during the year.
National Jewish Health Main Campus 1400 Jackson Street Denver, CO 80206
For more information, please contact: Judy Simon, at 303.753.6969
National Support Organizations
(Contact for more information)
Local ALS Organizations
ALS-MDA Rocky Mountain 720 South Colorado Blvd., Ste. 380 South, Denver, CO 80246 Office: 303.691.3331 Fax: 303.691.3379 Email: Christina N. Papadimitropoulos or Kristi Knoblauch
Resources available through local ALS Organization listed above:
Equipment Inventory/Loan closet with hospital beds, power chairs, speech devices and respiratory equipment. This is a free service and based on the needs and inventory.
Connecting families to research updates and opportunities.
Connecting families to one another as the best way to support each other and share local resources.
National ALS Organizations
ALS Association 1275 K Street, NW Suite 250 Washington, DC 20005 advocacy@alsa-national.org www.alsa.org Tel: 202.407.8580 Fax: 202.289.6801
Les Turner ALS Foundation 5550 W. Touhy Avenue Suite 302 Skokie, IL 60077-3254 info@lesturnerals.org www.lesturnerals.org Tel: 888.ALS.1107 or 847.679.3311 Fax: 847.679.9109
Muscular Dystrophy Association 222 S. Riverside Plaza Suite 1500 Chicago, IL 60606 mda@mdausa.org www.mda.org Tel: 800.572.1717 Fax: 520.529.5300
Project ALS 3960 Broadway Suite 420 New York, NY 10032 info@projectals.org www.projectals.org Tel: 212.420.7382 or 800.603.0270 Fax: 212.420.7387
ALS Therapy Development Institute 300 Technology Square Suite 400 Cambridge, MA 02139 info@als.net www.als.net Tel: 617.441.7200 Fax: 617.441.7299
Prize4Life P.O. Box 5755 Berkeley, CA 94705 contact@prize4life.org www.prize4life.org Tel: 617.545.4882
National Institute of Neurological Disorders and Stroke BRAIN P.O. Box 5801 Bethesda, MD 20824 www.ninds.nih.gov Tel: 800.352.9424
(Visit website for schedule)
Do you have questions about traveling with oxygen or pulmonary rehabilitation? Visit the American Lung Association's website to search for Better Breathers Club locations across the country.
You can also find support online at sites such as COPD-Alert.
Consulting individually with a mental healthcare professional familiar with chronic illness, especially occupational illness, may help you as well.
Beryllium Disease Support Group of Ohio
P.O. Box 55 Oak Harbor, OH 43449 email: theresan@umich.edu
The Beryllium Awareness Group
email: terry_cherney@rl.gov email: c_w_chuck_wildman@rl.gov
Beryllium Victims Alliance
504 Michigan Avenue Oak Ridge, TN 37830 email: wheezin2@aol.com email: fostergs@usit.net email: burlin@icx.net
Tucson Arizona Beryllium Support Group
11323 N. Anway Marana, AZ 85653 email: akasha@azstarnet.com
(2nd Thursday of every month, 2-3pm)
The meetings will include an educational presentation (a different topic each meeting), followed by open discussion of any topic. This monthly event takes place the second Thursday of every month from 2-3 p.m. at:
Virtual Support Group Only We will NOT be meeting at National Jewish Health
For Zoom information, please call Elizabeth Langhoff, LCSW, at 303.270.2743.
(1st Tuesday of every month, 6:30 p.m. - 7:30 p.m.)
Provides education on diabetes topics. Talk with others who have diabetes and discover useful ways to succeed in taking care of your own diabetes.
You will walk away feeling more confident to take care of your diabetes!
RSVP is not needed.
Patient support organizations can be helpful. An excellent resource for people with eczema is:
National Eczema Association for Science and Education
4460 Redwood Highway, Ste. 16-D San Rafael, CA 94903-1953
Phone: 415.499.3474, 1.800.818.7546 Fax: 415.472.5345 info@nationaleczema.org
To find a support group in your area, check out the following websites for more information:
The Pulmonary Fibrosis Foundation is dedicated to finding a cure for and raising awareness of pulmonary fibrosis, an often fatal lung disease. The Foundation is also devoted to improving the quality of life for those afflicted with this illness.
American Lung Association
The mission of the American Lung Association is to save lives by improving lung health and preventing lung disease.
National Institutes of Health (NIH)
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency — making important discoveries that improve health and save lives.
ClinicalTrials.gov
A service of the U.S. National Institutes of Health
United Network for Organ Sharing (UNOS)
United Network for Organ Sharing (UNOS) is the private, non-profit organization that manages the nation's organ transplant system under contract with the federal government.
(Second Tuesday of every month at 1:00 p.m. - 3:00 p.m. Virtual Only)
The Joe Walsh Memorial Pulmonary Fibrosis Support Group at National Jewish Health provides a safe, secure environment for all patients with any type of pulmonary fibrosis and their family members, care providers and significant others.
The meetings will provide a different topic each month with open discussion at the end of the meeting.
This event is open to patients of National Jewish Health, as well as visitors and community members. All are welcome!
For more information, contact: Interstitial Lung Disease Program pfsupport@njhealth.org
(3rd Thursday of every month, 2pm-3pm.)
Lung cancer patients and survivors and their caregivers and family members are invited to attend. The meetings will include a 30-minute educational presentation (a different topic each meeting), followed by open discussion of any topic. The group is open to people who have received treatment at National Jewish Health and elsewhere.
(Second Wednesday of Every Month, 12:00 - 1:00 PM MST)
Presented by:
Join the email list: https://redcap.link/metabolichealthsignup
Join Zoom meeting: https://bit.ly/njmetabolichealth
May 11th Subject:
Diabetes medications and how they can work for you
Download flyer (pdf)
(2nd Wednesday of every month from 11 a.m. to 12 p.m.)
While many people find it difficult to meditate, guided meditations make it easy for anyone to practice. Whether you meditate regularly or are new to the practice and wish to get started, guided meditations provide a way to effortlessly enter into a meditative state by the direction of an expert.
The session will be led by Lata Shirname-More, Manager, Div of Environmental Occupational Health Sciences, who has been a meditator for over 15 years and teaching it as a volunteer & certified instructor, through the Art of Living Foundation, which operates in 154 countries.
No preparation or training required; the voice of the teacher will lead you.
NTMinfo.org (Provided by NTMINFO & Research, Inc.) provides information and support for people with Nontuberculous Mycobacterial Infections.
View support group locations and contact information
(Meets the 3rd Saturday of every month, 10:00 a.m. - 11:30 a.m.)
The Transitioning to Plant-Based Eating Support Group provides education and support to those wishing to eat more plant-based. Whether you need to adopt this lifestyle due to health conditions such as high blood pressure, high cholesterol, osteoporosis, being overweight, etc., or you want to eat plant-based for other reasons, this group can help. Interact with experts who can help you get on a path that is sustainable, creates healthy change and handles challenges that may arise. Be with people who share your interest and who want to hear about your successes and help with roadblocks.
All are welcome for these FREE events!
For more information, please contact: Kelly LeGros Strickler, RDN, MS legros.strickler@gmail.com
2021 Schedule: Meets the 3rd Saturday each month starting Jan 21st. 2023, 10:00 a.m. - 11:30 a.m.
Zoom Meeting Information: Please contact Kelly LeGros Strickler, RDN, MS, at legros.strickler@gmail.com