FPF Genetic Counseling Program

1.800.423.8891 ext. 1097 or email Janet Talbert at talbertj@njhealth.org.


Pulmonary fibrosis is a disease characterized by progressive scarring of the lungs, which robs patients of the ability to breathe. Most cases are of unknown cause, and are called Idiopathic Pulmonary Fibrosis or IPF. An estimated 10-15 percent of IPF patients have a form of the disease that runs in families, called familial pulmonary fibrosis. Recent research has identified two genetic mutations that are associated with familial pulmonary fibrosis, and tests for those mutations have recently become available to the public.

National Jewish Health collaborates with the Coalition for Pulmonary Fibrosis and the Pulmonary Fibrosis Foundation to provide genetic counseling for familial pulmonary fibrosis patients. Learn more about the genetic counseling program


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Reasons to Visit National Jewish Health

  • The leading respiratory hospital in the nation and the only one devoted fully to the treatment of respiratory and related illnesses
  • Ranked as one of the top two hospitals in pulmonology every year since U.S. News & World Report included this category in its annual “Best Hospitals” survey
  • Ranked in the top 1 percent of hospitals in the nation by HCAHPS
  • Physicians frequently recognized as among the best in the nation by multiple services, including Best Doctors in America and Castle Connolly
  • Among the top 8 percent of organizations funded for research by the NIH, providing patients access to the latest clinical trials
  • 118-year history of focus on care, research and education serving thousands of patients with lung, heart, immune and related disorders


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‘Incredibly Grateful’

An autoimmune disease was robbing Heather Quilici of her ability to breathe. Doctors at National Jewish Health, who have specialized expertise in treating autoimmune lung conditions, stabilized her condition and greatly improved her quality of life.  

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