Support GroupsWhen you’ve been diagnosed with a serious illness, it can be helpful to talk with friends and family members. Sometimes it is beneficial to talk with people who have the same health issue. Support groups offer you time to meet and talk with other people with the same disease, to receive educational information and to learn about other resources that may help you.

Meetings are a safe and confidential place to share personal issues and learn from others’ experiences. Friends and family members are welcome to attend a support group meeting with you. Questions are encouraged — don’t be afraid to ask even the smallest question. Chances are others want to know the answer too!

If you aren’t interested in a support group, but need help coping with your condition, please talk with your doctor about counseling or other types of therapy.

View all support group events

 

National Jewish Health Support Groups

 

Other Support Groups & Resources

 

Alpha-1 Antitrypsin Deficiency

National Jewish Health is a proud sponsor of the Alpha Beaters. The Alpha Beaters is a support group dedicated to helping people learn to live better lives with alpha-1 antitrypsin deficiency.

Denver Support GroupAlpha Beaters

Support Group Meetings determined by the group during the year.

National Jewish Health Main Campus
1400 Jackson Street
Denver, CO 80206

For more information, please contact:
Janis Berend, RN, MSN, C-ANP, at 303.398.1858

 

COPD Support Group

The meetings will include an educational presentation (a different topic each meeting), followed by open discussion of any topic.

This monthly event takes place the second Thursday of every month from 2-3 p.m. at:

National Jewish Health Main Campus
Room L-111 (Conference room inside the cafeteria)
1400 Jackson Street
Denver, CO 80206

For information, please call Elizabeth Langhoff, LCSW, at 303.270.2743

 

CPAP & Sleep Apnea

CPAP Support Group

The purpose of the Continuous Positive Airway Pressure (CPAP) Support Group is to provide great resources, education and support for patients with sleep apnea and the community at large.

Meetings will include:

  • Guest speaker lectures on topics related to sleep apnea and CPAP use
  • Meeting with local industry representatives
  • Looking at the newest CPAP masks and equipment
  • Free blood pressure checks
  • Sleep techs and respiratory therapists available to answer questions, trouble shoot mask issues and check equipment
  • Free breakfast and coffee
  • Raffle prizes

This monthly event takes place at:

Molly Blank Conference Center
National Jewish Health Main Campus

1400 Jackson Street
Denver, CO 80206

For questions, please contact Ann Cartwright at cartwrighta@njhealth.org.

 

All About Sleep Apnea Class

This is a FREE educational class for patients with sleep apnea and their families.

Meetings will include:

  • What is sleep apnea?
  • Why do you have sleep apnea?
  • What are the symptoms and consequences of sleep apnea?
  • What are your treatment options?
  • CPAP therapy and tips/tricks for success
  • What else can you do to help your sleep apnea?

This event takes place

Tuesday from 3:30–4:30 p.m.
Thursdays from 3–4 p.m.

(with a few exceptions)

Patient Education room, A01B
National Jewish Health Main Campus

1400 Jackson Street
Denver, CO 80206

Go in the main entrance and take the elevator down to the basement. The education room will be in front of you.

No RSVP needed, but we recommend that you call ahead of time to confirm this week’s class schedule at 303.270.2708.

 

Diabetes Support Group

1st Friday of every month, 3–4 p.m. — FREE

  • Provides education on diabetes topics
  • Talk with others who have diabetes and discover useful ways to succeed in taking care of your own diabetes


The class and support group are meant for those:

  • Diagnosed with prediabetes or diabetes
  • Who need to learn or review self-management skills
  • Who desire better blood sugar control
  • Who have a family member with prediabetes or diabetes

You will walk away feeling more confident to take care of your diabetes!

RSVP is not needed. Please call ahead to confirm the schedule. Contact Ann Mullen, RN, CNS, AE-C at 303.398.1410.

* Please note new location: *

 

Joe Walsh Memorial Pulmonary Fibrosis Support Group

The Joe Walsh Memorial Pulmonary Fibrosis Support Group at National Jewish Health provides a safe, secure environment for all patients with any type of pulmonary fibrosis and their family members, care providers and significant others.

The meetings will provide a different topic each month with open discussion at the end of the meeting.

This event is open to patients of National Jewish Health, as well as visitors and community members. All are welcome!

This monthly event takes place at:

Molly Blank Conference Center, Room J105
National Jewish Health Main Campus

1400 Jackson Street
Denver, CO 80206

Second Tuesday of every month at 1:00 p.m.

April's topic: POC's and Traveling with Oxygen
Presented by John More, Oxygen Specialist
American Medical Sales and Repair

Contact: 
Carol Bair, RCP, CRC
Clinical Coordinator
303.398.1912
bairc@njhealth.org

 

Mile-High Pulmonary Fibrosis Support Group

The Mile-High Pulmonary Fibrosis Support Group in Wheat Ridge, Colorado, is dedicated to improving understanding of ILD & PF through education, emotional support and counseling for the patient, caregivers and significant others. It is important for the patient and family to stay informed about treatment options, exercise, diet, oxygen and clinical trials.

This monthly event takes place at:

Exempla Occupational Medicine and Physical Therapy Clinic
9830 I-70 West South Frontage Road
Wheat Ridge, CO 80033

This support group is held the last Tuesday of every month, 2:00-3:30 p.m. February  November.

Contact: 
Brenda Crowe, RT/Facilitator
303.467.4122
croweb@exempla.org

 

Genetic Counseling

Familial Pulmonary Fibrosis Genetic Counseling Program

National Jewish Health collaborates with the Coalition for Pulmonary Fibrosis to provide genetic counseling for familial pulmonary fibrosis patients. Click the link above to learn more.

National Jewish Health Main Campus
Patient Education Room, L111
1400 Jackson Street
Denver, CO 80206

Go in the main entrance and take the elevator to the basement. The education room will be in front of you. 

 

Lung Cancer Support Group

Lung cancer patients and survivors and their caregivers and family members are invited to attend a monthly meeting on the third Thursday of each month. The meeting is a full hour of open discussion/support group. The group is open to people who have received treatment at National Jewish Health and elsewhere.

This monthly event takes place at:

National Jewish Health Main Campus
Cafeteria, Room L-111

1400 Jackson Street
Denver, CO 80206

The Lung Cancer Support Group meets the third Thursday of each month, 2-3 p.m.

Topic for 3/17/16:
Talk with a Doc, Jeffrey Kern, MD, Chief of Oncology

Contact:
Bronwyn Long, RN, DNP, MBA, at 303.270.2392 or longb@njhealth.org


 

Asthma & COPD

Do you have questions about traveling with oxygen or pulmonary rehabilitation? Visit the American Lung Association's website to search for Better Breathers Club locations across the country.

You can also find support online at sites such as COPD-Alert.

 

Chronic Beryllium Disease

Consulting individually with a mental healthcare professional familiar with chronic illness, especially occupational illness, may help you as well.

Beryllium Disease Support Group of Ohio

P.O. Box 55
Oak Harbor, OH 43449
email: theresan@umich.edu

 

The Beryllium Awareness Group

email: terry_cherney@rl.gov
email: c_w_chuck_wildman@rl.gov

 

Beryllium Victims Alliance

504 Michigan Avenue
Oak Ridge, TN 37830
email: wheezin2@aol.com
email: fostergs@usit.net
email: burlin@icx.net

 

Tucson Arizona Beryllium Support Group

11323 N. Anway
Marana, AZ 85653
email: akasha@azstarnet.com

 

Eczema (Atopic Dermatitis)

Patient support organizations can be helpful. An excellent resource for people with eczema is:

National Eczema Association for Science and Education

4460 Redwood Highway, Ste. 16-D
San Rafael, CA 94903-1953

Phone: 415.499.3474, 1.800.818.7546
Fax: 415.472.5345
info@nationaleczema.org


ILD & Pulmonary Fibrosis

To find a support group in your area, check out the following websites for more information:

Coalition for Pulmonary Fibrosis

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to further education, patient support and research efforts for pulmonary fibrosis, specifically idiopathic pulmonary fibrosis (IPF).

Pulmonary Fibrosis Foundation

The Pulmonary Fibrosis Foundation is dedicated to finding a cure for and raising awareness of pulmonary fibrosis, an often fatal lung disease. The Foundation is also devoted to improving the quality of life for those afflicted with this illness.

American Lung Association

The mission of the American Lung Association is to save lives by improving lung health and preventing lung disease.

National Institutes of Health (NIH)

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency — making important discoveries that improve health and save lives.

ClinicalTrials.gov

A service of the U.S. National Institutes of Health

United Network for Organ Sharing (UNOS)

United Network for Organ Sharing (UNOS) is the private, non-profit organization that manages the nation's organ transplant system under contract with the federal government.

 

Nontuberculous Mycobacterial (NTM) Infections

NTMinfo.org (Provided by NTMINFO & Research, Inc.) provides information and support for people with Nontuberculous Mycobacterial Infections.

View support group locations and contact information


Amyotrophic Lateral Sclerosis (ALS)

Local ALS Organizations

ALS-MDA Rocky Mountain
720 South Colorado Blvd., Ste. 380 South,
Denver, CO 80246
Office: 303.691.3331
Fax: 303.691.3379
Email: Christina N. Papadimitropoulos or Kristi Knoblauch

Resources available through local ALS Organization listed above:

  • Equipment Inventory/Loan closet with hospital beds, power chairs, speech devices and respiratory equipment. This is a free service and based on the needs and inventory.

  • Connecting families to research updates and opportunities.

  • Connecting families to one another as the best way to support each other and share local resources.


National ALS Organizations

ALS Association
1275 K Street, NW
Suite 250
Washington, DC 20005
advocacy@alsa-national.org
www.alsa.org
Tel: 202.407.8580
Fax: 202.289.6801

Les Turner ALS Foundation
5550 W. Touhy Avenue
Suite 302
Skokie, IL 60077-3254
info@lesturnerals.org
www.lesturnerals.org
Tel: 888.ALS.1107 or 847.679.3311
Fax: 847.679.9109

Muscular Dystrophy Association
222 S. Riverside Plaza
Suite 1500
Chicago, IL 60606
mda@mdausa.org
www.mda.org
Tel: 800.572.1717
Fax: 520.529.5300

Project ALS
3960 Broadway
Suite 420
New York, NY 10032
info@projectals.org
www.projectals.org
Tel: 212.420.7382 or 800.603.0270
Fax: 212.420.7387

ALS Therapy Development Institute
300 Technology Square
Suite 400
Cambridge, MA 02139
info@als.net
www.als.net
Tel: 617.441.7200
Fax: 617.441.7299

Prize4Life
P.O. Box 5755
Berkeley, CA 94705
contact@prize4life.org
www.prize4life.org
Tel: 617.545.4882

National Institute of Neurological Disorders and Stroke
BRAIN

P.O. Box 5801
Bethesda, MD 20824
www.ninds.nih.gov
Tel: 800.352.9424