Policies & Guidelines
Our Commitment to Privacy
Your privacy is very important to the Participation Program for Pulmonary Fibrosis (P₃F). This website Privacy and Security statement describes website security measures we have in place to protect your information as well as the information we collect on this website and how we use it. Our overarching promise to our website visitors is that we will not sell your information-including your email, data on your website usage or personal medical information-to anyone. The P₃F complies completely and consistently with the United States Health Insurance Portability and Accountability Act of 1996 (HIPAA) law in regards to your personal medical information-we keep it secure and private, and only share it for reasons of medical service and research. If you have questions about the P₃F website privacy and security, please feel free to contact us by the postal mail address, email address, or phone number provided HERE, and we’ll be happy to assist you.
When we receive sensitive information from website visitors such as contact or medical information, we redirect visitors to a secure server using state-of-the-art encryption technology. We do this so that if this information is intercepted, it is not easily readable. We will not send your personal information to any other party. We also have appropriate security measures in place in our physical facilities to protect against the loss, misuse or alteration of information that we have collected from you at our website.
Your Information and How We Use It
As part of our Registry, we collect only the information that you provide. This may include contact, demographic, and health-related information. We keep this information in a secure and encrypted database and refer to it only in the event to contact you about research should you qualify and have previously provided permission to be contacted. We will not collect any other information through the website, but other information may be collected as a result of correspondence through e-mail, mail, or telephone. Any information collected will be kept private and will not be shared with an outside party.
Future Use of Website Visitor Information
From time to time, we may use website visitor information for new, unanticipated uses not previously disclosed here. If our information practices change at some time in the future, we will post the policy changes to this page, date them and provide you with the ability to opt out of these new uses.
The information and advice contained in or made available on or through the P₃F website is for informational and/or educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your personal physician or healthcare provider with any questions you may have regarding your specific medical condition.
Disclaimer of Warranty
The services, information, materials, or data (collectively “Information”) made available on the P₃F website are provided “AS IS,” without warranties of any kind, implied, expressed, or statutory, including but not limited to the warranties of non-infringement of third party rights, title, merchantability, fitness for a particular purpose, and freedom from computer virus, is given with respect to the contents of this website or its hyperlinks to other Internet resources. The P₃F makes no representation, warranty, or guaranty with respect to any Information contained in or made available on or through the P₃F website, including, without limitation, the content, sequence, timeliness, completeness, reliability, or accuracy of any Information (including any Information regarding the diagnosis, management, or treatment of any medical condition). To the extent permitted by law, the P₃F expressly disclaims any representations and warranties, including, without limitation, the implied warranties of merchantability and fitness for a particular purpose.
You may request not to be contacted by the P₃F in connection with new research or our biannual newsletter. Requests not to be contacted by the P₃F can be made using our contact information found HERE.
The sites linked to and from the P₃F website are not under the control of the P₃F, and the P₃F does not assume any responsibility or liability for any services, information, products, or materials available at such linked sites. Links are provided for convenience only, and are not intended to be endorsements of the linked sites or the information, content, services, products, or materials contained therein, or referrals by the P₃F to such linked sites.
Limitation of Liability
Neither the P₃F, its affiliates and agents, nor the officers, employees, and directors of each of them, will be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from your use of this website, including, without limitation, any liability for damage to your computer hardware, software, or data, or business. Except as prohibited by law, the P₃F shall have no liability for any loss or injury caused, in whole or in part, by its actions, omissions, or negligence in procuring, compiling, or delivering the Information, or any errors, omissions, or inaccuracies in the Information, regardless of how caused. In addition, the P₃F shall have no liability for any decision made, or action taken or not taken, in reliance upon the Information.
If you use the forum available through the P₃F site, you are solely responsible for your own communications, the consequences of posting those communications, and your reliance on any communications found in such Forums. In using such Forums, you agree to the following Terms and Conditions of Use:
(a) You represent and warrant that you are at least 18 years of age and that you will not permit the posting of questions or comments by persons under 18 years of age without the consent of their parents. [If an age restriction is applicable.] (b) You agree that you will not upload, post, transmit, distribute, or otherwise publish on the P₃F’s website any information or materials which (1) restrict or inhibit other Users from using the or enjoying the P₃F’s website or the Forum or which, in the judgment of the P₃F, exposes the P₃F or any of its vendors, partners, or suppliers to any liability or detriment of any type (2) are unlawful, obscene, derogatory, defamatory, threatening, harassing, abusive, slanderous, hateful, or embarrassing to any other person or entity as determined by the P₃F in its sole discretion; (3) names, email addresses, telephone numbers, or any other confidential or personally identifiable information of yourself or any person(s) or entities; (4) posting material that infringes on the copyrights or other intellectual property rights of others or on the privacy or publicity rights of others or using the website for any purpose violation of local, state, federal, or international laws; (5) posting advertisements or solicitations of business or posting links to other websites or individuals, without prior written permission from the P₃F and the persons or websites in question; (6) posting chain letters or pyramid schemes; (7) impersonating another person or entity, registering under more than one name and/or email address or allowing any other person or entity to use your identification for posting or viewing comments; (8) distributing viruses or other harmful computer code; (9) posting the same note more than once, violating the CAN-SPAM Act or otherwise engaging in any activity that would amount to “spamming”; or (10) after receiving a warning, continuing to disrupt the normal flow of dialogue, or posting comments that are not related to the topic being discussed (unless it is clear the discussion is free-form).
(c) You agree that you will not upload or transmit any communications or content of any type that infringes upon or violates any rights of any party. By submitting communications or content to any part of the P₃F website, you agree that such submission is non-confidential for all purposes.
The P₃F does not sponsor, endorse, or approve any specific commercial product or service mentioned on the P₃F website or on any websites linked to by the P₃F website.
This site does not accept paid advertising, and does not host or receive funding from advertising or from the display of commercial content.