Mission of P₃F
The Participation Program for Pulmonary Fibrosis (P₃F) is an innovative new program whose over-arching purpose is to identify and motivate patients to participate in the process of advancing knowledge of pulmonary fibrosis (PF). The mission of P₃F is to promote understanding of what it’s like to live with PF, to find ways to make life better for patients who suffer from this disease and ultimately, to help discover its cure.
The Director of the P₃F is Dr. Jeff Swigris from National Jewish Health in Denver, Colorado. Other P₃F team members include patients with PF, nurses with expertise in caring for patients with PF, patient advocacy group representatives and PF support group leaders. P₃F was borne out of a desire to unite people who share the goals of expanding PF research opportunities to patients across the U.S.–not just those who live near subspecialty clinics–and to improving the lives of patients with this terrible disease. The backbone of P₃F is a confidential registry of patients with PF (and/or their caretakers or family members) who may wish to participate in research projects as they become available. More than that, though, P₃F creates a transparent, trustworthy environment in which members can share ideas, keep up with the progress and results of P₃F-related research, play a role in disseminating new information about PF and get answers from people with expertise in PF.
Organizations like the American Thoracic Society and the American College of Chest Physicians–two of the largest medical associations in the U.S. dedicated to public education and scientific discovery in respiratory diseases–as well as various U.S. research funding organizations have finally recognized the importance of including “the patient’s perspective” in their programs. This means finding out from patients exactly which research questions to ask and drawing on patient input to design the studies that will yield the answers. You, the patient (and caregiver), are the experts here: you know better than anyone else what it’s like to live with pulmonary fibrosis. Join now and, whether you live next door to, or hundreds of miles away from, a medical center with expertise in PF, you can partner with other P₃F members to forge a new path to discovery for this disease.