MyAI Registry for People with Adrenal Insufficiency Request More Information Trial Objective To help better understand adrenal insufficiency (AI) and its progression, researchers have developed a new registry called MyAI. Information collected via online surveys for the registry will help researchers learn about patient experiences with the illness and how it is impacting their lives. Researchers also will use the data to assess the effectiveness of current treatments and identify common causes and risk factors for AI. Adults, as well as children from birth to age 18, who have been diagnosed with AI or who are at high risk of developing the disease are needed to participate in the registry. Enrollment Active Clinical Trials Currently Recruiting Who Can Participate Group 1: People with known adrenal insufficiency Group 2: At-risk of adrenal insufficiency due to drug treatments, family history or autoimmune disease Group 3: Control group. People with no adrenal disease or family history of adrenal disease, and people who have not been treated with high-risk drugs such as prednisone, dexamethasone or opiates Age: All Ages Gender: Any Gender Estimated Time Commitment Initial online survey will take 30 minutes. Follow-up surveys every six months will take five to 10 minutes. Total time involvement is 10-20 years. × Payments are intended to compensate the participant for their time and effort during the study. Payments are typically given to the participant at the end of each completed study visit. Reimbursements are intended to compensate the participant for travel-related expenses. They must be approved by the study staff and require you to turn in receipts. Travel reimbursement will vary from study to study. Payment & Reimbursement Payment: Not Provided Travel Reimbursement: Not Available Trial Contact For more information, contact: Whit Hover 303.398.1546. Request More Information Trial Location National Jewish Main Campus, Denver, CO Additional Resources Trial Sponsors National Adrenal Diseases Foundation Principal Investigators Elizabeth Regan, MD, PhD + × Elizabeth Regan, MD, PhD Associate Director, COPDGene Associate Professor Division of Rheumatology Department of Medicine View Full Profile Make an Appoinment Request More Information By completing this form, you agree to learn more about this study and see if you qualify. First Name:* Last Name:* Email Address:* Phone:* I would also like to receive periodic emails with health information, news and clinical research updates from National Jewish Health: YesNo
Trial Objective To help better understand adrenal insufficiency (AI) and its progression, researchers have developed a new registry called MyAI. Information collected via online surveys for the registry will help researchers learn about patient experiences with the illness and how it is impacting their lives. Researchers also will use the data to assess the effectiveness of current treatments and identify common causes and risk factors for AI. Adults, as well as children from birth to age 18, who have been diagnosed with AI or who are at high risk of developing the disease are needed to participate in the registry.