Support Groups: Interstitial Lung Disease and Pulmonary Fibrosis
To find a support group in your area, check out the following websites for more information:
The Joe Walsh Memorial Pulmonary Fibrosis Support Group at National Jewish Health provides a safe, secure environment for patients with any type of interstitial lung disease (ILD) and their family members, care providers and significant others.
The Mile-High Pulmonary Fibrosis Support Group in Wheat Ridge, CO is dedicated to improving understanding of ILD & PF through education, emotional support and counseling for the patient, caregivers & significant others. It is important for the patient and family to stay informed about treatment options, exercise, diet, oxygen and clinical trials.
The Coalition for Pulmonary Fibrosis (CPF) is a 501 (c) (3) nonprofit organization,founded in 2001 to further education, patient support and research efforts for pulmonary fibrosis, specifically idiopathic pulmonary fibrosis (IPF).
The Pulmonary Fibrosis Foundation is dedicated to finding a cure for and raising awareness of Pulmonary Fibrosis, an often fatal lung disease. The Foundation is also devoted to improving the quality of life for those afflicted with this illness.
National Jewish Health collaborates with the Coalition for Pulmonary Fibrosis to provide genetic counseling for familial pulmonary fibrosis patients.