FPF Resources and Support

 

Coalition for Pulmonary Fibrosis

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease.

The CPF funds promising research into new approaches to treat and cure pulmonary fibrosis; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of Pulmonary Fibrosis issues; and works to improve awareness of Pulmonary Fibrosis in the medical community as well as the general public.

The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. With more than 17,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with pulmonary fibrosis.

For more information please visit www.coalitionforpf.org or call (888) 222-8541.

Coalition for Pulmonary Fibrosis 
10866 W. Washington Blvd # 343
Culver City, CA  90232
888-222-8541
info@coalitionforpf.org
www.coalitionforpf.org

 


 

FPF Genetic Counseling Line

Coalition for Pulmonary Fibrosis and National Jewish Health Collaborate to Provide Genetic Counseling for Familial Pulmonary Fibrosis Patients Genetic Counseling, Medical Information, and Support Program First of its Kind in U.S.

Anyone with questions regarding the genetics of pulmonary fibrosis can call the toll-free line to speak with a qualified genetic counselor experienced with pulmonary fibrosis.

Call: 1-800-423-8891 ext. 1097

 


 

Pulmonary Fibrosis Foundation

The Pulmonary Fibrosis Foundation is a non-profit corporation founded in the state of Colorado in 2000 by Albert Rose and Michael Rosenzweig, Ph. D., both of whom were diagnosed with Pulmonary Fibrosis (IPF). Dr. Marvin Schwarz was also instrumental in its creation.  The national headquarters is located in Chicago, Illinois.

The Foundation is dedicated to providing the leadership and resources that have resulted in Increased Research, Improved Health, Early and Accurate Detection, and the Inspiration needed to Find a Cure for Pulmonary Fibrosis. The Foundation works closely with the National Institutes of Health (NIH), Universities, individuals affected with Pulmonary Fibrosis, and the pharmaceutical industry to expedite the development of new and improved therapies.

There is information on local support groups and online support groups.

Pulmonary Fibrosis Foundation 
811 W Evergreen Avenue Suite 303 
Chicago, IL 60642-2642 
888-733-6741 
info@pulmonaryfibrosis.org
www.pulmonaryfibrosis.org

 


 

American Lung Association

Information from the American Lung Association on pulmonary fibrosis can be found on their website.

 


 

Other Resources

 

Clinical Trials in Pulmonary Fibrosis

Learn about current clinical trials and research studies for pulmonary fibrosis: 
Go to www.clinicaltrials.gov and use "pulmonary fibrosis" as a term in the search for clinical trials.

 

GeneReviews

Learn more about the genetic factors involved in the development of pulmonary fibrosis at the National Center for Biotechnology Information.